President Dr. Mohamed Muizzu has assured the thalassemia community that his administration will prioritize their needs and work towards developing inclusive, patient-centred healthcare policies.
The President committed during a meeting held on Monday morning at the President’s Office with representatives from the thalassemia community. The forum served as a platform for patients, caregivers, and advocates to express concerns, propose ideas, and discuss long-term solutions with the country’s leadership.
Community representatives welcomed the Government’s willingness to engage directly and acknowledged the administration’s ongoing efforts to address their concerns. They highlighted that the current Government is the first to include specific provisions for children with thalassemia in its manifesto, adding that the community stands ready to support the formulation of inclusive policies.
One of the key requests made during the meeting was for the planned Thalassemia Hospital to be developed with direct input from the community. They stressed the importance of ensuring that the facility reflects the lived experiences, needs, and vision of patients and families affected by the condition.
The community also called for the transformation of the Maldives Blood Service (MBS) into a well-coordinated, nationwide system. They emphasized the need for closer collaboration between the service and thalassemia patients and provided detailed proposals to support their recommendations.
In response, President Muizzu acknowledged the significance of the issues raised and underscored the importance of patient participation in the policymaking process. He gave his assurance that the concerns shared by the community would be thoroughly reviewed and said the Government would work to ensure that thalassaemia patients have access to comprehensive treatment within the country.
The President reaffirmed his commitment to taking concrete steps to resolve the challenges faced by the community and reiterated the administration’s focus on inclusive, compassionate governance.
The President committed during a meeting held on Monday morning at the President’s Office with representatives from the thalassemia community. The forum served as a platform for patients, caregivers, and advocates to express concerns, propose ideas, and discuss long-term solutions with the country’s leadership.
Community representatives welcomed the Government’s willingness to engage directly and acknowledged the administration’s ongoing efforts to address their concerns. They highlighted that the current Government is the first to include specific provisions for children with thalassemia in its manifesto, adding that the community stands ready to support the formulation of inclusive policies.
One of the key requests made during the meeting was for the planned Thalassemia Hospital to be developed with direct input from the community. They stressed the importance of ensuring that the facility reflects the lived experiences, needs, and vision of patients and families affected by the condition.
The community also called for the transformation of the Maldives Blood Service (MBS) into a well-coordinated, nationwide system. They emphasized the need for closer collaboration between the service and thalassemia patients and provided detailed proposals to support their recommendations.
In response, President Muizzu acknowledged the significance of the issues raised and underscored the importance of patient participation in the policymaking process. He gave his assurance that the concerns shared by the community would be thoroughly reviewed and said the Government would work to ensure that thalassaemia patients have access to comprehensive treatment within the country.
The President reaffirmed his commitment to taking concrete steps to resolve the challenges faced by the community and reiterated the administration’s focus on inclusive, compassionate governance.
